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When Darian Durant learned of Addison and Emma, six-month-old twins facing an enormous struggle, he wanted to help.
The Saskatoon twins have been diagnosed with Spinal Muscular Atrophy Type 1 (SMA), which is a genetic condition that causes progressive loss of muscle function.
The incurable disease eventually results in the inability to sit, swallow or breathe. The life expectancy for SMA is one to two years.
Emma is currently breathing with the help of a respirator after being deemed palliative.
Saskatchewan quarterback Darian Durant learned of the twins’ fight and wanted to help out after hearing the family would have to quit their jobs and move away to take a chance on a cure.
The twins’ parents, Danny and Melissa Surine, have decided the babies will take part in a drug trial for a new medication that could be used to slow down, stop or even cure the disease.
The Surine family will have to give up their jobs and move to Vancouver for 14 months.
Durant will be at a fundraiser for the twins on Sunday in Saskatoon at Rock Creek Tap and Grill, where people will have the opportunity to watch the Rider game with the quarterback. Organizers will be auctioning off a chance to golf with Rob Bagg and Weston Dressler.
Game Day with Wray will broadcast live from Rock Creek in Stonebridge. Pre-game coverage starts at 10 a.m.
Donations for the twins can also be made online.
